Data & Research

Data-Driven, and Evidence-Based

Knowledge is Power

CARR's Data and Research articles keep consumers and interested professionals

apprised of trending issues in the both the data and research arenas.

RCFE Disaster Preparedness. . .Or Not?

Data & Research

CARR is pleased to offer the thesis of Melissa Reed entitled "Residential Care Facilities for the Elderly in California:  The Challenges of Disaster Planning and Response."  This document is required reading for RCFE owners and administrators, the management of Department of Social Services, Community Care Licensing, as well as consumers, and first responders.   The topic of Disaster Preparedness is under researched, making this study all the more important for increasing the body of knowledge about assisted living in California, but also for spotlighting the deficits in planning, response and execution in the face of adverse conditions combined with the continuing obligation of the RCFE to provide for residents in care.

Can Quality in Assisted Living Be Measured? One County’s Approach

Data & Research

CARR translated its recent work on San Diego County's pilot program to develop a rating system for assisted living facilities into a commentary.  The commentary was accepted for publication in the 2016 edition of Seniors Housing & Care JournalSeniors Housing & Care Journal is a peer-reviewed annual publication focusing on applied research and best practices in the fields of senior housing and long-term care.  CARR is pleased to contribute to the growing body of research on how to best translate quality of care to long-term care consumers.  The full article may be viewed by clicking here.

UPDATED Assisted Living APP "Assisted Living 101"

Data & Research

Update:  2/22/2017.  KUDOS and Thanks to our volunteer PADMA,who was able to update Assisted Living 101.  This app (written by Padma) contains terminology and context about the assisted living care model in California.  The updated app is available for download at the Google Play Store.  To those of you who have app, please refresh its content by downloading the newly updated content; to those of you who don't have it yet - its free, and asks for no private information, so there's no good excuse not to have this repository of current RCFE information at your fingertips.

Thanks to the generosity of our volunteer, Padma, CARR can now offer consumers the “Assisted Living 101” App available for download on any Android device.Seniors, families and professionals will find answers to the most fundamental questions about California’s assisted living industry. This app addresses both general and California-specific terminologies.  The app includes terms that are specifically related to California's Title 22 regulations for assisted living facilities.  Other terms are helpful for understanding general terms of care and care protocols.

Choose Well Rating System for Assisted Living

Data & Research

Following successful completion of a six month pilot program to develop a uniform rating system using public documents data for California assisted living facilities, CARR received a one-year follow-on contract to launch the program.  The San Diego County sponsored program is called "Choose Well", and will offer consumers direct contact with providers volunteering to participate.  Facilities who join the program will have their facility rated, using the Choose Well Scoring tool; they will receive a Facility Profile Page where the facility can promote the amenities, care, services, price range, and philosophy of care that make them a distinguished provider in the county.  

Discussion On Perceptions of Aging

Data & Research

"Why is there a drastic difference in people's perceptions of aging versus reality?" This was the question recently put to 44 experts in the field of aging by They compiled these responses to produce the report, American's Misconception On Aging. CARR was one of the contributors, alongside Dr. Bill Thomas, the SCAN Foundation and the American Health Care Association.  Below are some of the key findings and an excerpt from our contribution.  The entire report may be viewed here.

CARR Comments on Governor's 2015-16 Budget Proposal for CCL

Data & Research

Improvements to Community Care Licensing’s inspections of licensed care facilities are imperative.  However, to solely budget for an increase in inspection frequency may prove to be an overly-narrow approach to addressing the agency’s shortcomings.  Consumer Advocates for RCFE Reform (CARR) submits that the Governor’s current budget proposal does not adequately invest in Community Care Licensing’s (CCL) technical infrastructure, and, therefore, offers little to shield CCL and residents of licensed care facilities from the effects of future state budget crises. 

CARR's Research on Medical Needs in Non-Medical Facilities

Data & Research

The Aging-In-Place Disparity in California’s RCFEs: Medical Needs in Non-Medical Facilities​, by Christina L. Selder, M.S. & Christine M. Murphy, M.S.Presented at the Gerontological Society of America, Annual Scientific Meeting (Social Research, Policy & Practice) on November 20-24, 2013

Purpose: The vast majority of older adults (90%) report a preference to age-in-place and research has identified the value of older persons remaining in the same place till the end-of-life.  Aging-in-place has become an integral component of the philosophy and promise of the assisted living (AL) industry.  CARR’s ongoing public record research suggests that California’s policy and practices are creating an increased risk for older adults who choose to remain in assisted living facilities (ALF) and age-in-place.  CARR’s study examined the conceptual intersection where medical needs, non-medical facilities, and California’s AL regulations come together.

Assisted Living Waiver Program (ALWP) Enrolled Providers

Data & Research

The Assisted Living Waiver Program (ALWP), administered by the California Department of Health Care Services, as of January 2016, has 217 RCFEs enrolled in the program, up from 199 in December 1 2015.

The purpose of this program is to allow residents who are low-income and who would otherwise qualify for skilled nursing, to receive, as a Medi-Cal benefit, services that would otherwise not be reimbursed when delivered in the non-medical care setting of an assisted living facility.  Medi-Cal recipients can also receive SSI in California. For information on the program, please visit DHCS website.

CARR Contributes to CHCF Think Tank

Data & Research

California Healthline recently asked CARR and other experts in the field "How should California regulate its growing RCFE industry?".  Provided here is CARR's submission.  You can read all of the submissions by visiting

The Need for Data-Driven Practices

The primary focus surrounding California’s RCFE industry is policy reform.  In CARR’s view, modification of regulatory language may do little to affect the performance of facilities without accompanying improvements to the oversight and enforcement practices of California’s Department of Social Services (DSS).  CARR’s five years spent reviewing the public documents strongly suggests a department significantly weakened by the absence of evidence-based practices. 

CARR's Public Document Archive for Thesis or Dissertation

Data & Research

CARR was the first to harvest California public records on assisted living facilities (ALF), and to maintain a database of all public records in its possession.  Unlike other databases, CARR’s data is not supplied by facilities themselves.  Rather, the data is collected from the public documents in individual ALF files maintained by the California’s Department of Social Services (DSS), Community Care Licensing Division (CCLD), and San Diego Regional Office

CARR obtains access to facility files by submitting California Public Records Act (CPRA) requests to various CCLD regional offices.  Documents we ask for are: